These words from my friend, Fran, were just what I needed to start my day. May you also be blessed and join us in spreading light to this aching world.
Source: Be Light
These words from my friend, Fran, were just what I needed to start my day. May you also be blessed and join us in spreading light to this aching world.
Source: Be Light
Prompt: 5 minutes “Stand Alone”
Stand alone. On your own two feet. See what you can do without any others to stop you, to help you, to harm you, to interfere, to suggest other ways. What does your heart say? What is your heart saying to you?
Stand alone. You already do stand alone. But alone with a living God burning brightly inside your very heart chakra, comforting you, guiding you, suggesting ideas that will catapult you to the Highest Version of Yourself that you can imagine. We just don’t often take the time to listen to that part of ourselves. Yes, I believe the Holy Spirit is a part of each of us, so intertwined with every fiber of our being that we can never not be holy. If we listen.
Stand alone. I used to stand alone and mope inside about being alone. Why doesn’t anyone really understand me? I need them to understand me! I cried tears and sobbed guttural wails as I wrestled with the challenges of growing up, maturing, moving from an insecure teenager to an insecure adult, an insecure wife, mother, neighbor, church member, volunteer, over-achiever. Until it all came crashing down on me in the form of what would morph from one day of a swollen throat, fever, body aches worse than the flu, fatigue that slammed me flat to the surface of my water bed and wouldn’t let me go, into the woman I am now. Twenty-five years I’ve lived inside my body alone, alone in houses full of people who cannot understand this bizarre chronic illness. But now I stand alone – secure in Who I Am.
Boundaries burst every time. What the hell, you might say? I thought I’d learned that lesson and then you realize you’ve done it again — compromised your integrity, your soul, giving in to the pressures to be liked.
Boundaries burst when you’re a people pleaser. When you let yourself be guilted into making a different choice. “Sure, I’ll come to that.” “Sure, you can borrow my ________ ” fill-in-the-blank. “Sure!”
Boundaries burst when inside your head your voice is telling you one thing, reacting with a zillion thoughts, none of which come out of your mouth. “No problem!”
My husband calls it “Southern Belle Bullshit” — when (women) say one thing and mean another. He holds up his two outstretched hands: one motioning “come hither,” the other rigid, palm out, staunchly saying “No! Stop!” This always gets a laugh from an audience, but now when he does this, I notice at least half the time he has a point, has caught me sending mixed messages. Old habits die hard.
Boundaries burst when we throw off the shackles of our past. When we suddenly see, “Aha! Now I get it!” It might only seem like a tiny shift in perspective, but it’s an important one, a huge one, really.
Sometimes people have the tendency to overcorrect themselves — the gargantuan pendulum swing necessary for them to practice a new way. Off-putting, it can seem to others. Suddenly a shock. But no one is going to hand you permission to change on a silver platter when it means they no longer can rely on your co-dependence! Get real! But the brusque change can bristle others’ feathers, I’m just saying.
Boundaries burst for others, too. Let’s say you’ve had brick-tight boundaries, letting no one in. No one. Always protective of yourself. Emotions locked up so tight inside your chest, nary a tear has escaped your eyes in decades. Feelings bottled up, emotional expressions kept in check, invincible, strong. Well, maybe the occasional outburst, which no one saw coming or understood, because mostly you’ve never let anyone close enough to know the real feelings going on inside of you. But in the process, you have no intimate relationships. Not many anyway. Not really intimate. You’ve protected your heart with boundaries so clear it hurts. Boundaries bursting then are like a tight, full balloon ready to be tied off, but instead, something causes you to let it go, releasing it into the air in front of you. It sputters around the room in relaxed delight and you exhale and laugh and smile! You’ve let your drawbridge down, and others, timidly at first, start to cross the divisive moat you’ve built around yourself for years and years. Ah, yes. Love rushes in when boundaries burst. (time)
Right before Christmas I spontaneously answered an appeal from an organization I’ve been a part of since 1991. They’ve changed their name in an effort to reposition the invisible malady we share. The idea was to spread the work about ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) by asking ten people to donate twelve dollars each to raise money for much needed research. I made an embarrassing selfie Vimeo video, showing myself in the state I’ve hidden from the world, my town, my friends for twenty-five years. I hate asking people for money, so I tried to downplay the donation aspect while encouraging my friends to “share” the message to help raise awareness of Chronic Fatigue and Fibromyalgia. I took in a deep breath, said a prayer, and clicked the “post” button on Facebook well after midnight, before I lost my nerve.
I have over a thousand “friends” on Facebook, some I’ve never met in person. Many of themfrequently “like” the inspirational quotes I post, photos of my precious granddaughter, humorous jokes, pretty pictures of the beach. The resulting response of silence to my linked video in my Facebook world was palpable, deafening really. What on earth had I done? Had I just “lost” a bunch of “friends?”
Slowly, a few responses trickled in, applauding my courage. One night I received a private message from a long lost friend, thanking me for my candor, explaining how my video had affected her family. Her son had been diagnosed with Chronic Fatigue Syndrome a couple of years prior, but things had been getting very tense in her household, as her husband just didn’t understand and he had been getting more and more frustrated with their son. She had showed my video to her son, who said my description was “spot on.” She had showed it to her husband and “something clicked” and he finally “got it.” The role of caretaker to those of us with ME/CFS is a lonely and weary one, too. I sighed, finding comfort that I had helped someone. The personal embarrassment was worth it, if I had only helped that one family.
I called my best friend in Tennessee and asked her opinion.
“It was pretty depressing,” she admitted with her familiar chuckle.
“I know, right? But that’s how I really am about 75% of the time.”
“Really? I would’ve guessed about 25%.”
“No, I just don’t answer the phone or talk about it every time I’m so down, even with you. You know me better than anyone and you really thought I felt this way only 25% of the time? Should I delete it?”
“No, but maybe you could do a follow-up video explaining more? And just shoot from the hip, no script, just telling it like you just told me.”
I took her advice and recorded a more upbeat video. I put on make-up and filmed it outside on my deck, sunshine and chirping birds in the background. I got a few more “likes.” I raised a little money. But another friend, one who had lived with similar health challenges for decades as well, told me she liked the first video better — that she felt like I had negated all the wonderful honesty I’d expressed in the first one when I posted the second one.
So I did a third one, this time using YouTube. It was right before Christmas. I held my iPhone out and recorded another selfie with Christmas music in the background. This one was a mix of the two. I got a few more “likes,” more heartfelt donations, and several private messages thanking me for validating similar feelings, for expressing the day to day realities of living with CFS and Fibromyalgia in a way that reached family members who had not been very understanding until seeing my video.
After Christmas, my husband found a “scooter” on sale at a medical supply place and, after 25 years of hiding my pain, painting on a smile for the world, living a mostly housebound life, I took my first spin. I was a nine-year old with a new bicycle! You could not wipe the smile from my face! I felt only joy and exuberance as I felt the wind in my hair as I zipped down the street!
“I hope this doesn’t make you feel … disabled, handicapped.”
“Well, of course it does! But I’m so over it! I’m 55 and I am so over it!”
The first few times I drove my “Go Go,” I stayed on the same two streets I’d walked for years whenever I could get out of the house. But two weeks ago I branched out and took a “walk” (“a scoot”?) beyond the side street on which I’ve lived for fifteen years, but have only seen, I realized, from a car window. As I motored past Wake Forest Elementary, a nostalgic tear slipped out behind my Ray Bans. I recalled the many times I had joined first Caroline, then Hallie, for lunch in that noisy cafeteria. Light and noise and smells had assaulted my sensitive body and I’d smiled my way through the thirty minute experience before I drove home and crashed in the bed, resting up before time to pick them up in the carpool line at 3:20. The sounds of those little elementary school children, their energy, their boisterous joy, the innocent, promising twinkle in their eyes — I am so glad I got to experience them! I am so grateful that I braved the times I sucked it up and went to my daughers’ schools even when I didn’t feel up to it. I almost always paid a dear price later, but no one can take those memories away from me.
Continuing, we turned the corner and then another corner, the Seminary campus on our right. Roosevelt, my little terrier mix, trotted right along with me, both of us learning how to navigate the moving vehicle and the leash, adjusting our speed from “hare” back down to “tortoise” when he galloped and fell behind; stopping abruptly when he found a bush he was determined to sniff, to lift his leg and make his mark while I untangled and readjusted the leash situation. Ideally, I needed him on my left, freeing my right hand to press the lever forward when we were ready to go; to release when we needed to stop suddenly.
“I don’t think this is an all-terrain vehicle, Roosevelt,” I said when we hit a rough parts of the sidewalk, ran over anything larger than a sweet gum ball, navigated turns. Cars sped past us as we made our way down Durham Road, the major 35 mph thoroughfare through our small town. I kept my head down for a few houses, but at some point I got the courage to look up, to smile and nod my head to people whose faces turned to look at me through car windows, rolled up in the chilly winter air.
Near the end of our mile-long scoot, I got my new scooter stuck on uneven pavement and had to exert great effort to help it get over the hump. Then we met with a rather large branch that had fallen on the sidewalk. Ignorantly, I tried to go over it instead of getting off and moving the debris. The plastic basket popped off and I stopped us abruptly. We’d almost rolled over it. We’d almost tipped over. I got off, figured out how to reattach the basket, and moved the branch. We finally made it back to our street without seeing anyone I knew.
I took out my iPhone and recorded a little of our scoot-walk, capturing Roosevelt’s cute little run beside me. When I posted that on Facebook, I got over 70 “likes” and quite a few comments.
One friend asked to see a picture of the actual scooter. I retrieved the only one I had, the one taken by my husband the first day he had surprised me with the after Christmas gift. I was wearing no make up, no bra, my wild hair unruly around my ear warmer headband. It was not a flattering picture at all. But something inside me said, “What the hell? I’m 55. I already posted that depressing video. Who gives a rip?” So I commented back on that post and attached the awful photo, once again getting over myself and letting real life — my real life — show.
Anne Lamott’s words always speak to me, and so I will share her words from today:
This will not be well written or contain any answers or be very charming. I won’t be able to proof read it It is about times like today when the abyss is visible and we cannot buy cute area rugs at IKEA to truck out the abyss. Our brother Robin fell into it yesterday. We are all staring at the abyss today.
I called my Jesuit friend the day after the shootings in Newtown, stunned, flat, fixated, scared to death: “Is there any meaning in the deaths of twenty 5 and 6 year old children?”
Tom said, “Not yet.”
And there is no meaning in Robin’s death, except as it sheds light on our common humanity, as his life did. But I’ve learned that there can be meaning without things making sense.
Here is what is true: a third of the people you adore and admire in the world and in your families have severe mental illness and/or addiction. I sure do. I have both. And you still love me. You help hold me up. I try to help hold you up. Half of the people I love most have both; and so do most of the artists who have changed and redeemed me, given me life. Most of us are still here, healing slowly and imperfectly. Some days are way too long.
And I hate that, I want to say. I would much prefer that God have a magic wand, and not just a raggedy love army of helpers. Mr. Roger’s mother told him when he was a boy, and a tragedy was unfolding that seemed to defy meaning, “Look to the helpers.” That is the secret of life, for Robin’s family, for you and me.
I knew that those children at Sandy Hook were caught in God’s loving maternal arms at the second each crossed over, and the teachers were, too. I believe the shooter was too, another child of God with severe mental illness, because God loves, period. But this is controversial.
I know Robin was caught too, in both the arms of God, and of his mother, Laurie.
I knew them both when I was coming up, in Tiburon. He lived three blocks away on Paradise drive. His family had money; ours didn’t. But we were in the same boat–scared, shy, with terrible self esteem and grandiosity. If you have a genetic predisposition towards mental problems and addiction, as Robin and I did, life here feels like you were just left off here one day, with no instruction manual, and no idea of what you were supposed to do; how to fit in; how to find a day’s relief from the anxiety, how to keep your beloved alive; how to stay one step ahead of abyss.
We all thought after Newtown that gun control legislation would be passed, but no–not one new law. We think in the aftermath of Robin’s death that there will be consciousness raising about mental health, but I doubt it. The shock and awe will pass, like it did after Phillip Seymour Hoffman’s death. Unless…unless we take action. But what? I don’t have a clue. Well, here’s Glenn Close’s astonishing organization to raise awareness and diminish the stigma of mental illness, where you can give OR receive help: http://www.bringchange2mind.org. Go there, OK?
In Newtown, as in all barbarity and suffering, in Robin’s death, on Mount Sinjar, in the Ebola towns, the streets of India’s ghettos, and our own, we see Christ crucified. I don’t mean that in a nice, Christian-y way. I mean that in the most ultimate human and existential way. The temptation is to say, as cute little believers sometimes do, Oh it will all make sense someday. The thing is, it may not. We still sit with scared, dying people; we get the thirsty drinks of water.
This was at theologian Fred Buechner blog today: “It is absolutely crucial, therefore, to keep in constant touch with what is going on in your own life’s story and to pay close attention to what is going on in the stories of others’ lives. If God is present anywhere, it is in those stories that God is present. If God is not present in those stories, then they are scarcely worth telling.”
Live stories worth telling! Stop hitting the snooze button. Try not to squander your life on meaningless, multi-tasking bullshit. I would shake you and me but Robin is shaking us now.
Get help. I did. Be a resurrection story, in the wild non-denominational sense. I am.
If you need to stop drinking or drugging, I can tell you this: you will be surrounded by arms of love like you have never, not once, imagined. This help will be available twenty/seven. Can you imagine that in this dark scary screwed up world, that I can promise you this? That we will never be closed, if you need us?
Gravity yanks us down, even a man as stunning in every way as Robin. We need a lot of help getting back up. And even with our battered banged up tool boxes and aching backs, we can help others get up, even when for them to do so seems impossible or at least beyond imagining. Or if it can’t be done, we can sit with them on the ground, in the abyss, in solidarity. You know how I always say that laughter is carbonated holiness? Well, Robin was the
ultimate proof of that, and bubbles are spirit made visible.
Depression is a lonely business. It sits behind one’s steady eyes, shaking your faith in yourself, your place in this world, your desire to stay in it. Sometimes it all just seems too much. And when you’ve felt like this more times than you can count, and you’re on the downhill slope of life anyway, and you’re so tired, just so tired of keeping on keeping on, you just might reach for something, anything really. Whatever calls your name while you look for a speck of light in the dark inky world of despair you can’t see as temporary anymore. This time I reach for expensive, brand name Prozac. It keeps me here. This time.
Tuesday, July 22, 2014, 11:11 am
Prompt: “Interior Vision” 20 minutes
Interior vision happens when we stop the madness of the world to dwell with what’s inside our very cells, our breath, behind our eyes where luscious sunsets melt their beauty, trickling rose and orange down into our very souls, at the cellular level we cannot see, cannot fathom, yet feel all the same.
Interior vision. With interior vision there are no blind spots, only more and more mirages that manifest into truths you feel with your very heart, way down deep. You think, “Aha! Truth!” But as soon as you think it, “it” dissipates into a thousand glass shards, reflecting light that bounces all over the place, like too many kids on a trampoline at one time. Truth ricochets from one side of your head to the other and you smile as you reach for it yet again, it was so profound, you almost had it, almost had it!
Damn. You lost it, but it felt so good. You felt so good for a second or two. One with the Divine, only lasting as long as the flutter of a soft breeze in the kelly green leaves of the mighty oak, planted solidly in the earthy ground, roots running long and deep, locked into the core of mother earth. And so you ground yourself again, resuming the long, slow, deep breathing, inhaling love, exhaling fear; inhaling peace, exhaling fear; emptying your mind of worldly thoughts of tasks that beckon you away from connecting with this interior vision. What’s that about? Why so elusive?
Ahhh. Breathe again. More deeply. Even more deeply. Light the incense to help you find it again. Hold that crystal quartz, the malachite, the rhodocrosite maybe? Inhale the Nag Champa fragrance and close your eyes and make a path, a space for interior vision to come forth, to blossom. Inhale “sat,” exhale “nam.” “Truth is my identity.” Breathe in time with the soft instrumental yoga music in the background, a clear sapphire pool of answers as you dare to stick one toe in. Not ready? Inhale deeply, exhale even more, with a full sigh if you have it in you. Empty out, empty out the garbage of your sticky life, your busy mind. Let the soft low beats of the tabla, the plucks of the harp, the lilting bass clarinet sing you once again into that quiet place where interior vision can emerge. Where truth rises up, a single image loaded with paragraphs of inarticulatable messages from spirit.
I am the smiling dolphin rising from the sea, nodding genuine loving-kindness and approval to the thirsty me on the shore. It is good. We are one. We are all One. Mere drops of the same healing ocean. There is hope. At least for this moment in my interior vision.
Prompt: 15 minutes: “A gentle heart….”
A Gentle Heart
A gentle heart is what I have sometimes, what I show to the world. I hide the dark part of my heart, my soul processing shameful feelings secretly, purging them of any power over me. The self-doubt, the insecurities, the grief, depression, desperation, feelings of futility, despair.
I breathe. Deeply. Remember to do as I’ve been taught — let those darker images pass, like clouds on a windy day. Breathe in love, breathe out fear. Fill myself up with so much love, so much light; breathe out any resistance, any darkness, any remnant of any fear. Cultivate a loving heart, a compassionate heart, a gentle heart.
In my mind I picture a little me, about three or four years old, and I take that little girl in her handsewn powder blue light cotton nightgown onto my lap, wrap my strong, warm arms around her. “Shhh…,” I say. “It is all alright. I’ve got you now. You can relax, just be.” And I clutch that little Ginny to my breast so I can hear my own heartbeat. It slows, beats steadily, then more quietly, strong but reassured as I relax and relearn to just be.
So hard, sometimes, to remember I am still this perfect child of God, even with all my imperfections. I am not Jesus Christ! I don’t have to be perfect to be worthy! As a matter of fact, that is the Easter message, as I prepare my heart during this Lenten season, opening myself again and again to the abundant grace of God.
A gentle heart. Thank God God has a gentle heart for all Her children. I crawl up into the lap of God and listen to the steady beating of His gentle heart. I breathe along with the breath of God until our hearts beat as One. I close my eyes and inhale deeply the Oneness, and I fill myself up. Then I slide off my Father/Mother’s lap and prepare to go about my day with a quieter, gentler heart.
Haiku for the New Year
I am sick and tired
of feeling sick and tired of
feeling sick and tired.
Haiku for the New Year #2
Next year this time I’ll
be writing longer blog posts,
more frequently, too.
July 9, 2013
Prompt: 15 minutes: “supposed to”
She was supposed to get a lot accomplished today, piles of vacation mail littering the kitchen counter, dirty clothes on the laundry room floor, wilting calla lily plants screaming for water from their old pots, long leaves drooping. She turns the pots occasionally, angling them away from sunny windows so they’ll reach out, stretch outward in another way, filling out, not so lopsided from years of inattention save the weekly dousing when she had too much on her mind to cherish every little moment, every little thing.
Life is supposed to last long, keep on going, the canvas unfurling indefinitely, inviting one to pick up brushes full of color and paint your heart’s desire.
But it doesn’t always go that way now, does it? No, sometimes we get so busy we’re like Little Black Sambo running around the tree so fast, fleeing from the tiger, whipping himself into butter he did, I did, we do.
When you are young, it seems like forever between Christmases, you wanting to fit into your mother’s dyed to match green high-heeled pumps, their chunky heels clomp clomp clomping along the hardwood floor, headed for the kitchen where your mother is fixing you and your stuffed friends a tea party.
As a mother, you make a mental note of your daughter’s living in the moment joy while pretending she is all grown up. You snap a picture of her in the netting skirt atop her size 4T jeans, the old burgundy velvet hat that was your grandma’s, the white kid gloves all the ladies wore back then, back when you’re sure time must have passed more slowly. You take the tiny plastic Strawberry Shortcake plates your daughter brings so trustingly to your care for her own “pea darty.” You place equal numbers on each of Cheerios, pretzel sticks, grapes and cheese, knowing she will eat it all, helping out Big Bird, Sally, Ga Ga and Snowy. Life is supposed to be this good and it really is! It really is!!!
Until some days it’s not, it’s just not.
You analyze and debate inside your head what’s missing, what might be if things were even better. If you could be more of yourself in this marriage, if life is supposed to be this conflicted, this painful, this small. You smile at your children during the day, singing soulful lyrics with Amy Grant, Carole King, Carly Simon, as you drive your kids on errands. They learn the words and sing refrains in their little voices, legs kicking, oblivious.
You come to dread 5 pm some days, then weekends, living for Monday mornings, quiet midnight hours when you can fold hot, clean smelling towels fresh from the dryer on the carpet in the hall all by yourself, sometimes weeping. How did it get like this? Surely this is not the way it’s supposed to be, is it? Is it?
That first marriage was supposed to be the only one. They were supposed to live happily ever after. They were supposed to grow old together.
But time can heal old wounds. How nice that finally, they can laugh and break bread together again in their grown daughters’ homes, new partners by their sides, all “one big happy family.” Maybe that’s the way it’s supposed to be — multiple sets of parents and step parents all together toasting graduations and marriages of their grown up children, reminiscing together about the good memories of the days gone by.