Prompt: 5 minutes “Stand Alone”
Stand alone. On your own two feet. See what you can do without any others to stop you, to help you, to harm you, to interfere, to suggest other ways. What does your heart say? What is your heart saying to you?
Stand alone. You already do stand alone. But alone with a living God burning brightly inside your very heart chakra, comforting you, guiding you, suggesting ideas that will catapult you to the Highest Version of Yourself that you can imagine. We just don’t often take the time to listen to that part of ourselves. Yes, I believe the Holy Spirit is a part of each of us, so intertwined with every fiber of our being that we can never not be holy. If we listen.
Stand alone. I used to stand alone and mope inside about being alone. Why doesn’t anyone really understand me? I need them to understand me! I cried tears and sobbed guttural wails as I wrestled with the challenges of growing up, maturing, moving from an insecure teenager to an insecure adult, an insecure wife, mother, neighbor, church member, volunteer, over-achiever. Until it all came crashing down on me in the form of what would morph from one day of a swollen throat, fever, body aches worse than the flu, fatigue that slammed me flat to the surface of my water bed and wouldn’t let me go, into the woman I am now. Twenty-five years I’ve lived inside my body alone, alone in houses full of people who cannot understand this bizarre chronic illness. But now I stand alone – secure in Who I Am.
Right before Christmas I spontaneously answered an appeal from an organization I’ve been a part of since 1991. They’ve changed their name in an effort to reposition the invisible malady we share. The idea was to spread the work about ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) by asking ten people to donate twelve dollars each to raise money for much needed research. I made an embarrassing selfie Vimeo video, showing myself in the state I’ve hidden from the world, my town, my friends for twenty-five years. I hate asking people for money, so I tried to downplay the donation aspect while encouraging my friends to “share” the message to help raise awareness of Chronic Fatigue and Fibromyalgia. I took in a deep breath, said a prayer, and clicked the “post” button on Facebook well after midnight, before I lost my nerve.
I have over a thousand “friends” on Facebook, some I’ve never met in person. Many of themfrequently “like” the inspirational quotes I post, photos of my precious granddaughter, humorous jokes, pretty pictures of the beach. The resulting response of silence to my linked video in my Facebook world was palpable, deafening really. What on earth had I done? Had I just “lost” a bunch of “friends?”
Slowly, a few responses trickled in, applauding my courage. One night I received a private message from a long lost friend, thanking me for my candor, explaining how my video had affected her family. Her son had been diagnosed with Chronic Fatigue Syndrome a couple of years prior, but things had been getting very tense in her household, as her husband just didn’t understand and he had been getting more and more frustrated with their son. She had showed my video to her son, who said my description was “spot on.” She had showed it to her husband and “something clicked” and he finally “got it.” The role of caretaker to those of us with ME/CFS is a lonely and weary one, too. I sighed, finding comfort that I had helped someone. The personal embarrassment was worth it, if I had only helped that one family.
I called my best friend in Tennessee and asked her opinion.
“It was pretty depressing,” she admitted with her familiar chuckle.
“I know, right? But that’s how I really am about 75% of the time.”
“Really? I would’ve guessed about 25%.”
“No, I just don’t answer the phone or talk about it every time I’m so down, even with you. You know me better than anyone and you really thought I felt this way only 25% of the time? Should I delete it?”
“No, but maybe you could do a follow-up video explaining more? And just shoot from the hip, no script, just telling it like you just told me.”
I took her advice and recorded a more upbeat video. I put on make-up and filmed it outside on my deck, sunshine and chirping birds in the background. I got a few more “likes.” I raised a little money. But another friend, one who had lived with similar health challenges for decades as well, told me she liked the first video better — that she felt like I had negated all the wonderful honesty I’d expressed in the first one when I posted the second one.
So I did a third one, this time using YouTube. It was right before Christmas. I held my iPhone out and recorded another selfie with Christmas music in the background. This one was a mix of the two. I got a few more “likes,” more heartfelt donations, and several private messages thanking me for validating similar feelings, for expressing the day to day realities of living with CFS and Fibromyalgia in a way that reached family members who had not been very understanding until seeing my video.
After Christmas, my husband found a “scooter” on sale at a medical supply place and, after 25 years of hiding my pain, painting on a smile for the world, living a mostly housebound life, I took my first spin. I was a nine-year old with a new bicycle! You could not wipe the smile from my face! I felt only joy and exuberance as I felt the wind in my hair as I zipped down the street!
“I hope this doesn’t make you feel … disabled, handicapped.”
“Well, of course it does! But I’m so over it! I’m 55 and I am so over it!”
The first few times I drove my “Go Go,” I stayed on the same two streets I’d walked for years whenever I could get out of the house. But two weeks ago I branched out and took a “walk” (“a scoot”?) beyond the side street on which I’ve lived for fifteen years, but have only seen, I realized, from a car window. As I motored past Wake Forest Elementary, a nostalgic tear slipped out behind my Ray Bans. I recalled the many times I had joined first Caroline, then Hallie, for lunch in that noisy cafeteria. Light and noise and smells had assaulted my sensitive body and I’d smiled my way through the thirty minute experience before I drove home and crashed in the bed, resting up before time to pick them up in the carpool line at 3:20. The sounds of those little elementary school children, their energy, their boisterous joy, the innocent, promising twinkle in their eyes — I am so glad I got to experience them! I am so grateful that I braved the times I sucked it up and went to my daughers’ schools even when I didn’t feel up to it. I almost always paid a dear price later, but no one can take those memories away from me.
Continuing, we turned the corner and then another corner, the Seminary campus on our right. Roosevelt, my little terrier mix, trotted right along with me, both of us learning how to navigate the moving vehicle and the leash, adjusting our speed from “hare” back down to “tortoise” when he galloped and fell behind; stopping abruptly when he found a bush he was determined to sniff, to lift his leg and make his mark while I untangled and readjusted the leash situation. Ideally, I needed him on my left, freeing my right hand to press the lever forward when we were ready to go; to release when we needed to stop suddenly.
“I don’t think this is an all-terrain vehicle, Roosevelt,” I said when we hit a rough parts of the sidewalk, ran over anything larger than a sweet gum ball, navigated turns. Cars sped past us as we made our way down Durham Road, the major 35 mph thoroughfare through our small town. I kept my head down for a few houses, but at some point I got the courage to look up, to smile and nod my head to people whose faces turned to look at me through car windows, rolled up in the chilly winter air.
Near the end of our mile-long scoot, I got my new scooter stuck on uneven pavement and had to exert great effort to help it get over the hump. Then we met with a rather large branch that had fallen on the sidewalk. Ignorantly, I tried to go over it instead of getting off and moving the debris. The plastic basket popped off and I stopped us abruptly. We’d almost rolled over it. We’d almost tipped over. I got off, figured out how to reattach the basket, and moved the branch. We finally made it back to our street without seeing anyone I knew.
I took out my iPhone and recorded a little of our scoot-walk, capturing Roosevelt’s cute little run beside me. When I posted that on Facebook, I got over 70 “likes” and quite a few comments.
One friend asked to see a picture of the actual scooter. I retrieved the only one I had, the one taken by my husband the first day he had surprised me with the after Christmas gift. I was wearing no make up, no bra, my wild hair unruly around my ear warmer headband. It was not a flattering picture at all. But something inside me said, “What the hell? I’m 55. I already posted that depressing video. Who gives a rip?” So I commented back on that post and attached the awful photo, once again getting over myself and letting real life — my real life — show.
Anne Lamott’s words always speak to me, and so I will share her words from today:
This will not be well written or contain any answers or be very charming. I won’t be able to proof read it It is about times like today when the abyss is visible and we cannot buy cute area rugs at IKEA to truck out the abyss. Our brother Robin fell into it yesterday. We are all staring at the abyss today.
I called my Jesuit friend the day after the shootings in Newtown, stunned, flat, fixated, scared to death: “Is there any meaning in the deaths of twenty 5 and 6 year old children?”
Tom said, “Not yet.”
And there is no meaning in Robin’s death, except as it sheds light on our common humanity, as his life did. But I’ve learned that there can be meaning without things making sense.
Here is what is true: a third of the people you adore and admire in the world and in your families have severe mental illness and/or addiction. I sure do. I have both. And you still love me. You help hold me up. I try to help hold you up. Half of the people I love most have both; and so do most of the artists who have changed and redeemed me, given me life. Most of us are still here, healing slowly and imperfectly. Some days are way too long.
And I hate that, I want to say. I would much prefer that God have a magic wand, and not just a raggedy love army of helpers. Mr. Roger’s mother told him when he was a boy, and a tragedy was unfolding that seemed to defy meaning, “Look to the helpers.” That is the secret of life, for Robin’s family, for you and me.
I knew that those children at Sandy Hook were caught in God’s loving maternal arms at the second each crossed over, and the teachers were, too. I believe the shooter was too, another child of God with severe mental illness, because God loves, period. But this is controversial.
I know Robin was caught too, in both the arms of God, and of his mother, Laurie.
I knew them both when I was coming up, in Tiburon. He lived three blocks away on Paradise drive. His family had money; ours didn’t. But we were in the same boat–scared, shy, with terrible self esteem and grandiosity. If you have a genetic predisposition towards mental problems and addiction, as Robin and I did, life here feels like you were just left off here one day, with no instruction manual, and no idea of what you were supposed to do; how to fit in; how to find a day’s relief from the anxiety, how to keep your beloved alive; how to stay one step ahead of abyss.
We all thought after Newtown that gun control legislation would be passed, but no–not one new law. We think in the aftermath of Robin’s death that there will be consciousness raising about mental health, but I doubt it. The shock and awe will pass, like it did after Phillip Seymour Hoffman’s death. Unless…unless we take action. But what? I don’t have a clue. Well, here’s Glenn Close’s astonishing organization to raise awareness and diminish the stigma of mental illness, where you can give OR receive help: http://www.bringchange2mind.org. Go there, OK?
In Newtown, as in all barbarity and suffering, in Robin’s death, on Mount Sinjar, in the Ebola towns, the streets of India’s ghettos, and our own, we see Christ crucified. I don’t mean that in a nice, Christian-y way. I mean that in the most ultimate human and existential way. The temptation is to say, as cute little believers sometimes do, Oh it will all make sense someday. The thing is, it may not. We still sit with scared, dying people; we get the thirsty drinks of water.
This was at theologian Fred Buechner blog today: “It is absolutely crucial, therefore, to keep in constant touch with what is going on in your own life’s story and to pay close attention to what is going on in the stories of others’ lives. If God is present anywhere, it is in those stories that God is present. If God is not present in those stories, then they are scarcely worth telling.”
Live stories worth telling! Stop hitting the snooze button. Try not to squander your life on meaningless, multi-tasking bullshit. I would shake you and me but Robin is shaking us now.
Get help. I did. Be a resurrection story, in the wild non-denominational sense. I am.
If you need to stop drinking or drugging, I can tell you this: you will be surrounded by arms of love like you have never, not once, imagined. This help will be available twenty/seven. Can you imagine that in this dark scary screwed up world, that I can promise you this? That we will never be closed, if you need us?
Gravity yanks us down, even a man as stunning in every way as Robin. We need a lot of help getting back up. And even with our battered banged up tool boxes and aching backs, we can help others get up, even when for them to do so seems impossible or at least beyond imagining. Or if it can’t be done, we can sit with them on the ground, in the abyss, in solidarity. You know how I always say that laughter is carbonated holiness? Well, Robin was the
ultimate proof of that, and bubbles are spirit made visible.
Tuesday, July 22, 2014, 11:11 am
Prompt: “Interior Vision” 20 minutes
Interior vision happens when we stop the madness of the world to dwell with what’s inside our very cells, our breath, behind our eyes where luscious sunsets melt their beauty, trickling rose and orange down into our very souls, at the cellular level we cannot see, cannot fathom, yet feel all the same.
Interior vision. With interior vision there are no blind spots, only more and more mirages that manifest into truths you feel with your very heart, way down deep. You think, “Aha! Truth!” But as soon as you think it, “it” dissipates into a thousand glass shards, reflecting light that bounces all over the place, like too many kids on a trampoline at one time. Truth ricochets from one side of your head to the other and you smile as you reach for it yet again, it was so profound, you almost had it, almost had it!
Damn. You lost it, but it felt so good. You felt so good for a second or two. One with the Divine, only lasting as long as the flutter of a soft breeze in the kelly green leaves of the mighty oak, planted solidly in the earthy ground, roots running long and deep, locked into the core of mother earth. And so you ground yourself again, resuming the long, slow, deep breathing, inhaling love, exhaling fear; inhaling peace, exhaling fear; emptying your mind of worldly thoughts of tasks that beckon you away from connecting with this interior vision. What’s that about? Why so elusive?
Ahhh. Breathe again. More deeply. Even more deeply. Light the incense to help you find it again. Hold that crystal quartz, the malachite, the rhodocrosite maybe? Inhale the Nag Champa fragrance and close your eyes and make a path, a space for interior vision to come forth, to blossom. Inhale “sat,” exhale “nam.” “Truth is my identity.” Breathe in time with the soft instrumental yoga music in the background, a clear sapphire pool of answers as you dare to stick one toe in. Not ready? Inhale deeply, exhale even more, with a full sigh if you have it in you. Empty out, empty out the garbage of your sticky life, your busy mind. Let the soft low beats of the tabla, the plucks of the harp, the lilting bass clarinet sing you once again into that quiet place where interior vision can emerge. Where truth rises up, a single image loaded with paragraphs of inarticulatable messages from spirit.
I am the smiling dolphin rising from the sea, nodding genuine loving-kindness and approval to the thirsty me on the shore. It is good. We are one. We are all One. Mere drops of the same healing ocean. There is hope. At least for this moment in my interior vision.
Prompt: 15 minutes: “A gentle heart….”
A Gentle Heart
A gentle heart is what I have sometimes, what I show to the world. I hide the dark part of my heart, my soul processing shameful feelings secretly, purging them of any power over me. The self-doubt, the insecurities, the grief, depression, desperation, feelings of futility, despair.
I breathe. Deeply. Remember to do as I’ve been taught — let those darker images pass, like clouds on a windy day. Breathe in love, breathe out fear. Fill myself up with so much love, so much light; breathe out any resistance, any darkness, any remnant of any fear. Cultivate a loving heart, a compassionate heart, a gentle heart.
In my mind I picture a little me, about three or four years old, and I take that little girl in her handsewn powder blue light cotton nightgown onto my lap, wrap my strong, warm arms around her. “Shhh…,” I say. “It is all alright. I’ve got you now. You can relax, just be.” And I clutch that little Ginny to my breast so I can hear my own heartbeat. It slows, beats steadily, then more quietly, strong but reassured as I relax and relearn to just be.
So hard, sometimes, to remember I am still this perfect child of God, even with all my imperfections. I am not Jesus Christ! I don’t have to be perfect to be worthy! As a matter of fact, that is the Easter message, as I prepare my heart during this Lenten season, opening myself again and again to the abundant grace of God.
A gentle heart. Thank God God has a gentle heart for all Her children. I crawl up into the lap of God and listen to the steady beating of His gentle heart. I breathe along with the breath of God until our hearts beat as One. I close my eyes and inhale deeply the Oneness, and I fill myself up. Then I slide off my Father/Mother’s lap and prepare to go about my day with a quieter, gentler heart.
In six weeks I’ll be a grandmother and I don’t really know what to think about that. Everyone says, “Congratulations! It’s so much fun being a grandmother! Bet you can’t wait to get your hands on that baby!”
I do love babies. I consider “the nurturing mother” my strongest archetype. Yet for some reason the expectation of this first biological grandchild has me feeling a bit unsettled, and I’m not sure why.
I love to hold newborns. I do so easily, naturally, swaying back and forth automatically. Whenever I stand up to hold a baby, cradling it in my arms, immediately my weight wants to shift side to side like a metronome. My eyes take in the little one, peering into those innocent eyes, or admiring the sleepily closed, rosy eyelids. I stop momentarily to lift the little bundle to my nose to breathe in that heavenly, sweet new baby smell they lose after a while, when they become bigger children.
And they do grow — so quickly. It seems like yesterday when I held my own babies in my arms, swaying, and sometimes I was just so tired that I longed for a night of uninterrupted sleep.
Sometimes, in the moment, it’s hard. You’re tired and she cries and you don’t know what she needs, what she wants, and she can’t tell you yet, and so you give her everything you’ve got, I mean everything you’ve got, and sometimes she settles down and you sigh with relief and resume the loving, natural, relaxed stance, but sometimes … sometimes it’s just not enough.
Like when she’s in middle school and you hate those catty girls she seems to care so much about, who say mean things to your precious one and you want to tell her it doesn’t matter, that in ten years you won’t care, if you even remember at all that they laughed at the new haircut you were so delighted with as you smiled at your reflection in the mirror that very morning before school.
Like when she’s in high school and thinks she’s grown up and doesn’t need to be in by 11pm, no one else has to be in so early, I was only ten minutes late, you can’t ground me for that, oh yes I can, give me your car keys. Now. I hate you, well, I still love you, but we’ll talk about this later, go on to your room. Now.
God, it’s hard to grow up. It’s hard, sometimes, to be a kid, a teen, a young adult, a parent, a mother, especially a “good” mother, whatever that is, and it changes with each child, with the times, and there are no rule books, there just aren’t. Maybe I’m scared it’ll be hard to be a grandmother, too.
It always turns out all right. Perfectly, really, since there is no one “right” way, only choices, then more choices that add up to one’s life — infinite possibilities, and they’re all okay. Really, they’re all okay.
Perhaps it’s best I don’t know what to expect in six weeks. Sure I’ve heard, I’ve read, and mostly it sounds terrific. But will she love me as much as she loves her other grandparents? Will I have the energy to be present in my granddaughter’s life the way I want to be? Health challenges limited and defined so much of how I ended up mothering my own, but we lived under the same roof so at least I got to be with them, reading books in bed, inhaling the Johnson’s baby shampoo smell on their clean toddler heads. Will I have the physical energy to drive to see this new baby, to keep her overnight when her parents go out-of-town or need a break?
It blows my mind to see my little girl all grown up now, round with child, resting her arms on her belly, wondering if she might have “an outie” before her daughter sees the light of day. It amazes me to see her organized home, where decoratively painted and ribboned wooden 3, 6, 9 numerals hang on the rod in the nursery closet, already separating by sizes the matching outfits and dresses others have graciously given them or they’ve already bought from Baby Gap. It touches some part of my heart I cannot name, do not know, when I am shown the inside of the drawers of the dresser/changing table given to them by friends and now filled with freshly washed and folded onesies, teeny tiny socks, soft pima cotton swaddling blankets, hooded bath towels. Was I ever this organized? If so, it was definitely when I was awaiting the birth of my own firstborn, this now-almost-mother who is no longer “mine.” Ahh…maybe this is what threatens my peace in some way — a feeling that this milestone will somehow end a chapter of my own life, when really it should just open up a new one.
Now, in my own home, I sway with anticipation, cradling my doggie (my dogs have always consoled me) and I wait, tentatively, for the birth to be behind us, for all to be healthy and well and on the other side of this momentous occasion. How strange to know this new little life will fill all our hearts with more love than we can imagine, stir feelings in me I’ve never known, complete some part of the circle of life I don’t even feel I’m missing. All I know is that my own grown up little girl better be all right. God, may she have a smooth labor and delivery, a healthy baby, and the strength and good health to enjoy the abundance of rewards that come with the blessing of motherhood. Keep her safe, God. Just keep my baby safe.
Haiku for the New Year
I am sick and tired
of feeling sick and tired of
feeling sick and tired.
Haiku for the New Year #2
Next year this time I’ll
be writing longer blog posts,
more frequently, too.
I dedicate the sharing of this post to my daughter, Caroline Craft Merrill, who will soon be a pastor’s wife. I am so very proud of her and of her husband, Cameron! Love you both!
November, being the month of Thanksgiving and all, inspires many folks to record a list of things for which they are grateful. Also, November is the lead-in to Advent, when we celebrate the birth of Jesus, the ultimate gift for those of the Christian faith, which tends to also turn our hearts outward toward thinking of others.
My Kundalini yoga teacher, a Sikh, encourages her students to maintain “an attitude of gratitude.” I think the idea of gratefulness for all the many blessings we see on this earth around us can only contribute to our personal happiness and, therefore, ooze out of us and add to the happiness of others with whom we come in contact. In other words, gratitude encourages us “to share the love.” And Lord only knows this world can use all of that we can muster.
Since I am trying to do the NaBloPoMo (National Blog Posting Month), it makes sense to include this practice of naming blessings daily during the month of November. I wrote most of this yesterday, but I didn’t get it posted, so I’ll do two for today!
For November 1st, I hereby record the obvious: I am grateful for Jesus Christ in my life, who taught me there is so much more than meets the eye – that the Spirit realm is where it’s at. When the chips are down, this message always lifts me up. When pain engulfs my body, I hold on, knowing there is something more, much more, to this life than just the physical.
For November 2, I declare my gratitude for my daughters, Caroline and Hallie, who have taught and continue to teach me about love, trust, holding close and letting go. When God entrusted them to my care at their births, something innate and beautiful began to blossom in me. In some ways I felt so unprepared to be their mother; in other ways instincts that surprised me took over and I just “knew” what to do in various situations. I basically took motherhood one day at a time, sometimes one temper tantrum at a time, for what “worked” with Caroline often did not with Hallie — evidence of the individuality of life! But at the root of it all was and is a kind of natural, unconditional love so big it fills my heart and overflows even now that they are adults making their own ways in this world. I am ever so grateful to have healthy relationships with each of them, and that they share their hearts with me. I am grateful every time I get to talk to them on the phone or get a text message with silly emoticons, or just a check in “just landed back at RDU! Love y’all!”